If everyone could please say some prayers for us for tomorrow, we’d appreciate it more than anything. We have some scans that determine a lot for her.
I could never share things before when fostering our little angel babe, but we have overcome so many obstacles and battles along our journey so far.
Hadlee came to us as a little precious miracle but little did we know a few weeks later we’d take her to the doctor and be sent to children’s and have a 5 night stay followed with many many tears as I felt hopeless, and wanted to just take everything away from her at that exact moment. In our 5 night stay we discovered so many things thrown our way all at once like her heart being on the wrong side, genetic findings that can eventually lead to a learning disability, heart not working properly, neurological issues, infantile spasms, eye problems, breathing issues, recurrent infections, and I’m sure there is more I’m forgetting. Long story short, we quickly became signed up with about every specialist at children’s. We’ve seen helmet, audiology, neurology, ophthalmology, cardiology, sleep clinic, pulmonolgy, gi specialist, allergy clinic, neurosurgery.
Thankfully we have overcome a lot of our battles in this first year of life and we are growing so much and becoming so strong; we can see perfectly, we may be getting released from neuro this week, no hearing issues, no more helmet, steadily growing through gi. With that being said all of the amazing news seems to follow up with a little disappointment sometimes.
We did find out at one and half years old or so she’ll need surgery to correct her spinal cord but first they need to know what’s going on with the heart.
Tomorrow morning I’m back at children’s with Hadlee to be sedated for a cat scan of the heart, a bronchi scope with lung sample, and an ultrasound for recurrent infections. As a mother I’m hurt, I’m confused, I’m worried, and I just pray and pray that she is blessed and given good news from her scans.
This little girl deserves the world and more and I’m so thankful god placed her in our arms to make sure that happens. I’ll continue to fight for her but sometimes it just takes some prayers and good vibes to help us get over the hurtles.
** attached is some pH๏τos from our journey and hospital stays that we’ve overcome. Swipe to the end to see our happy babe today